Patient Data Management

Patient Data Lifecycle Management

Managing patient data requires attention throughout the data lifecycle:

1. 1Collection: Gather only necessary data with proper consent
2. 2Storage: Secure storage with encryption and access controls
3. 3Processing: Use data only for authorised purposes
4. 4Sharing: Follow protocols for data exchange
5. 5Retention: Maintain data according to legal requirements
6. 6Disposal: Secure deletion when no longer needed

Security Measures

• End-to-end encryption for all patient data
• Multi-factor authentication for data access
• Regular security assessments and penetration testing
• Intrusion detection and monitoring
• Secure backup and disaster recovery

Interoperability Standards

Exchange patient data using healthcare standards:

• HL7 FHIR for modern API-based exchange
• HL7 v2 for legacy system integration
• DICOM for medical imaging
• ICD-10/11 for diagnosis coding
• SNOMED CT for clinical terminology

Patient Rights

• Right to access their health records
• Right to request corrections
• Right to know who has accessed their data
• Right to restrict certain uses
• Right to data portability